After the cycle of
vertigo attacks began, the traveling Bob's job
required was no longer feasible. "If it hadn't
been for that, I'd still be doing it. But I just
couldn't fly like that anymore," he declares.
"I was so afraid of having an attack and being
away from home."
Bob's otologist prescribed a treatment regimen that
included diuretics, diazepam, and a low-sodium diet.
In addition, Bob tried to learn everything he could on
his own about his disease and the available treatment
options. "I was in such bad shape that I was
determined to try to do something to help
myself," he relates. "I have a briefcase
literally full of literature and information related
to Ménière's Disease. I called all over the country
and spoke to different doctors, after I read about the
treatments they had tried. Then I'd bounce these
things off of my doctor, and see what he
thought."
Regrettably, none of the treatments Bob read about
seemed viable to him. "I explored all of the
surgical options with my doctor and opted not to do
any of them…same for the injectable treatments.
Everything I read and was told seemed to suggest they
would work for a while, but the symptoms always came
back. Some of the treatments were so destructive, to
me they really weren't an option, except as an
absolute last resort."
| Ménière's
Disease had a major effect on Bob and
Shirley's lives. Married for 45 years, they
were accustomed to a full life. Bob loved to
play golf, enjoyed reading, going to movies,
and they both went to church every Sunday.
Family time was also a priority, and their two
sons, both married, lived nearby. Yet all of
that changed with Ménière's Disease.
"It is very debilitating and changes your
whole life. You go from someone who enjoys
life and many activities to someone who is
afraid to leave the house-because you never
know when you're going to have another
attack," Bob explains. "I felt very
discouraged and depressed many times. I
thought my life as I knew it was over." |
 |
The disease robbed Bob of his independence, and
Shirley, too. After a frightening experience in June
2000, Bob decided he could no longer drive by himself.
"Shirley had company at the house and I had
errands to do, so I left," recalls Bob.
"Driving back home on I-75, which was seven lanes
going one way, a vertigo attack hit me. I was in the
middle lane of seven lanes of traffic- how I ever got
over to the highway shoulder without causing an
accident, I do not know. I wasn't so much worried
about myself, but the thought of hurting innocent
people scared me to death. I never drove by myself
again."
With other vehicles speeding by him, Bob sat in his
car along I-75 for 1½ hours with his eyes closed,
waiting for the spinning to stop. "After
that," he maintains, "Shirley had to go with
me everywhere I went. I would only drive on 2-lane
roads-that way, if I felt an attack coming on, I could
easily pull over to the side of the road and Shirley
could drive."
A particularly violent attack occurred one Sunday
morning in autumn of 2001, when Bob and Shirley were
getting ready to go to church. "I walked into the
garage to get in the car," Bob remembers,
"and all of a sudden, it was as if someone stood
behind me, grabbed hold of my suit collar, and
violently jerked me backwards. I fell on the floor of
the garage, which is where Shirley found me. If it
hadn't been for a small sweep broom that my head
happened to land upon, I would have hit the concrete
floor of the garage with full force."
This incident clearly emphasized the dangers of his
disease, and Bob wondered what the future held with so
few treatment choices available for him. "I had
run out of options until I saw the Meniett®
Low-Pressure Pulse Generator in a national vestibular
newsletter," he declares. "So I started
tracking it down-I called Medtronic Xomed and got
information about it. Then I pestered my doctor for a
prescription and got the unit in December 2001."
| Bob
had a ventilation tube placed in his ear and
started using the device. "I was really
feeling better the first few weeks. I was more
steady." He continues, "I had a
couple of light vertigo attacks and light
nausea-but they didn't last as long as they
did before and they weren't as bad." |
 |
A couple of months after Bob began treatment with
the device, however, the ventilation tube became
dislodged on two occasions. "My doctor said I
have a very thin tympanic membrane, which makes it
difficult for it to hold a ventilation tube," Bob
asserts. After the tube came out the second time,
Bob's doctor inserted a larger ventilation tube.
Unfortunately, Bob developed an ear infection that
required treatment with antibiotics for a few weeks.
He also had to temporarily discontinue treatment with
the Meniett device, and his Ménière's Disease
symptoms returned.
After his ear infection cleared, Bob resumed
treatment with the Meniett device and his symptoms
again improved. He has not had any more problems with
the larger ventilation tube, and continues to follow
the low-sodium diet, diuretic, and diazepam regimen
along with his Meniett treatment. "I'm so
thankful I'm better-not only for my sake, but for my
wife's. She's really had a time trying to take care of
me….helping me to bed when I couldn't walk, going
everywhere with me, afraid to leave me at home by
myself in case I fell…it's been very hard on her,
too."
| Knowing
the hopelessness Ménière's sufferers can
feel, Bob has spent a great deal of time
talking to others who share his disease.
"You not only feel like you're
alone-other people don't understand or even
know what it is," he states. "People
can feel sympathy for someone on crutches, but
Ménière's Disease is more hidden. You don't
'look' like anything is wrong with you."
Now, Bob and
Shirley are able to live "a pretty normal
life," as Bob describes it. Recently,
they drove to eastern North Carolina to visit
his wife's sister, over 1000 miles away. Bob
drove almost the entire trip-something that
previously would have been
|
 |
|
unthinkable. "To be
able to drive 1000 miles is quite a level to reach-I
haven't traveled more than 40 miles from home for two
years," he asserts. |
Friends would invite us
on various trips," Bob says, "but I wouldn't
even consider it; I was just so afraid of having an
attack while traveling. So this was really a big thing
for us. It was very uplifting to have been able to
make this trip. And I felt good the whole time."
| The
Patient Testimonial you have just read is from
a real patient with Menieres' disease. They
have related their actual experiences with the
disease and the Meniett device. This patients'
story may or may not be representative of the
total population using the Meniett device as
results vary from patient to patient. Most
Menieres' patients receive varying degrees of
relief from their symptoms; however, there are
some |
 |
|
patients who have reported
receiving no relief. Please see your health care
provider to determine if the Meniett device is right
for you. |
Meniett and local
pressure treatment is only to be used after doctor's
prescription. If you wish to order a Meniett and have
a doctor's prescription, click
here.
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